Tuesday, December 3, 2013

Men and Suicide Bereavement Survey to Inform New Grief Support Needs

Men and Suicide Bereavement Survey to Inform New Grief Support Needs

Denver, Colorado. October 14, 2013.  The Carson J Spencer Foundation and Unified Community Solutions are conducting an exploratory survey to get a better sense of the experience of men who are bereaved by suicide and the needs they may have in their grief.


Men who have been bereaved by suicide are invited to participate in a survey to share about their experiences subsequent to their loss. If you are a man 19 or older and have lost someone close to you to suicide (e.g., family member, close friend, co-worker, etc.), your participation in the study is needed. The purpose of this survey is to better understand the experiences men have after suicide loss and the types of support they have found helpful or would like to have available.  All responses will be anonymous and confidential. The study should take no more than 10 to 15 minutes to complete, and you can opt out of the survey at any time. There is no compensation available for the completion of the survey, but we appreciate men bereaved by suicide taking the time to tell us about their experiences.

In addition, if you are connected to other men who have been bereaved by suicide, we ask for your support in passing along this request to them.

For more information about this survey, please contact Dr. Sally Spencer-Thomas at 720-244-6535 or Sally@CarsonJSpencer.org. Thank you in advance for your time and consideration.



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About the Carson J Spencer Foundation - Sustaining a Passion for Living
The Carson J Spencer Foundation (www.CarsonJSpencer.org) is a Colorado nonprofit, established in 2005.  We envision a world where leaders and communities are committed to sustaining a passion for living. We sustain a passion for living by:
  • Delivering innovative and effective suicide prevention programs for working-aged people
  • Coaching young leaders to develop social enterprises for mental health promotion and suicide prevention
  • Supporting people bereaved by suicide

About Unified Community Solutions
Unified Community Solutions (www.unifiedcommunities.com) is a private consultancy based in Massachusetts, specializing in training and advocacy for peer-based suicide grief support and in planning, development, and leadership of community-based suicide grief support programs. UCS owner Franklin Cook is also the creator of Personal Grief Coaching, a telephone support service he administers to help bereaved people.


Contact:          
Dr. Sally Spencer-Thomas                                                                  
CEO & Co-Founder
Carson J Spencer Foundation
720-244-6535

Franklin Cook
Owner
Unified Community Solutions
617-398-0243

Monday, October 28, 2013

IASP’s Remembrance Ceremony in Oslo: A Glow around the World

IASP’s Remembrance Ceremony in Oslo: A Glow around the World
Sally Spencer-Thomas
Carson J Spencer Foundation (USA)

On Friday, September 27th at dusk, I joined 30 attendees from the International Association for Suicide Prevention’s World Congress to walk together through the streets of Oslo to attend a Remembrance Ceremony at Domkirken, Oslo’s main church.

This place was chosen because of its special connection to supporting communities in grief. After the July 22, 2011 massacre, friends and loved ones gathered at the Oslo cathedral to mourn the 93 victims killed in twin terror attacks from a bombing in downtown Oslo and a mass shooting on Utoya island. Because of the important role the church played after this tragedy, the church was forever changed and became a place of safety for community healing.

During the remembrance ceremony, participants from Australia, Norway, China, Belgium, Ireland, the US and many other countries encircled a light globe in the center of the sanctuary.  After a moment of reflective silence, an opera singer began a haunting aria that filled the cathedral and brought waves of emotion over me. 
Not only for the losses experienced by our group and the spread of tragedy the impact of those losses had around the planet, but for the collective grief of this place and the honoring of the lives that goes in hand with the mourning.

After a welcome from the church’s pastor and Henning Herristad from LEVE - The Norwegian Organization for the Suicide Bereaved,  Jill Fisher from Australia’s StandBy and I led the group in a four candle ritual:

FOUR CANDLES RITUAL
The first candle represents our grief. The pain of losing you is intense. It reminds us of the depth of our love for you.
This second candle represents our courage. To confront our sorrow, to comfort each other, to change our lives.
This third candle we light in your memory. For the times we laughed, the times we cried, the caring and joy you gave us.
This fourth candle we light for our love. We light this candle so that your light will always shine.
As we share this day of remembrance with our family and friends, we cherish the special place in our hearts that will always be reserved for you. We thank you for the gift your living brought to each of us.
We love you. We remember you.

After we had lit our four candles, we invited the others to join as they were so moved to light a candle in member of a loved one that passed, in honor of those that struggle with or who have overcome suicide crises in their lives, and in solidarity of the fight we are in together to end suicide. Some people said the names of their loved ones out loud, others paid their respect in silence or in tears. In the end, the glow of the candles around the globe was more than a ritual, it was a symbol of our how our international community can pull together out of this human devastation and bring light and warmth to a world filled with despair.

As we closed our remembrance ceremony, a cappella music again filled the space with reverence and awe. We exited with our hearts filled with emotion and made a commitment to bring this tradition to every IASP conference.


The light shines on.



Reprinted with permission by the American Association of Suicidology and the International Association for Suicide Prevention
International Associate for Suicide Prevention
American Association of Suicidology

Tuesday, September 3, 2013

The Paradox of Traumatic Grief

Take the light, and darken everything around me
Call the clouds and listen closely, I'm lost without you
Call your name every day when I feel so helpless
I'm fallin' down but I'll rise above this, rise above this
~“Rise Above This,” Seether
The lead singer for the rock band Seether wrote those lyrics in the aftermath of his brother’s suicide. The video for the song depicts what many people feel upon hearing the news that their loved one has died.  A mother, a father, a sister – all going about their normal daily lives -- are suddenly blown completely off their feet by an unseen force. 
The course of a complicated bereavement, like the process that often follows suicide, usually does not follow the straightforward path outlined by Elizabeth Kubler-Ross so many decades ago, but rather twists and turns and circles back on itself through mazes of denial, sadness, anger, shame, blame, and multiple physical reactions.  Several authors have described an “oscillating process” in complicated bereavement – a moving back and forth between loss-orientation and restoration orientation[1], between growth and depreciation[2]. In this oscillating process survivors of suicide loss can move closer to some people and further away from others. They may simultaneously experience increased symptoms of distress and feelings of adaptation as these states appear to be independent dimensions.
As survivors of suicide loss learn to adjust to the empty chair and redefine life without the physical presence of their loved ones, they can feel like they have lost a part of themselves.  Not everyone is debilitated by this loss, however, and the bereaved often fall into one of three clusters:
  1. Quick recovery.  Those who recover quickly without assistance and can return to functioning as before.  Some of these people are not distressed because they had only superficial contact with the deceased, while others are often internalizing and suppressing pain, anger or guilt.  In the latter case, maladaptive strategies of coping may emerge such as substance abuse or other compulsive behaviors.
  2. Modest support needed.  Most people who were functioning well before the suicide need only a modest level of support for anywhere from a month to a couple of years.  This level of support might include outpatient therapy or support groups.
  3. Psychiatric disability. Some people may develop a mental disorder, such as post-traumatic stress disorder or depression, in reaction to the trauma and loss and may require extended or intensive treatment.
For the first couple of years after my brother Carson’s death, I moved in and out of these three states. Sometimes I would feel like I was functioning well, other days I would get through with a call to a friend or a visit to a support group, and some days I would be so consumed with the sadness of what had happened that I would benefit from periods of counseling.
In the aftermath of an unexpected death, especially suicide, traumatic grief is a common reaction.  When this occurs both trauma and grief reactions are experienced together, and elements of this combined level of psychological distress are often debilitating and complex. 
A number of circumstances about a suicide death may influence traumatic grief reactions[3]:
  • Suddenness or lack of anticipation.  The unexpected death offers no opportunity for goodbyes, unfinished business, resolution of conflict, or answers to questions.  Very often the bereaved are left with endless “whys” and “what ifs.”  When loved ones die from a prolonged illness, by contrast, we have time to prepare ourselves for their absence.
  • Violence, mutilation, and destruction.  Deaths that involve suffering or extreme pain may cause horrifying traumatic imagery and intrusive thoughts – whether or not the bereaved actually witnessed the death or the body. If the death occurred in a familiar or personal space of the bereaved, that space will most likely continue to trigger traumatic reactions.
  • Preventability or randomness of death. The randomness of such a loss can trigger a greater sense of vulnerability and anxiety. This is often the case when there were no apparent warning signs before the person died.
  • Multiple deaths (bereavement overload) or multiple losses. In addition to the primary loss of the person, secondary losses may include loss of an income, loss of a home, or loss of all things familiar.  The resulting disorganization can strain the family and social system.
  • Contact with first responders or the media. Sometimes the reactions of first responders – who need to rule out homicide in every suicide case – can increase confusion and distress among those bereaved. If the events surrounding the death were newsworthy, the bereaved may also be dealing with the intrusion of the media.
Trauma reactions and grief work are often at odds with each other. On one hand, the trauma experience leads to continual intrusion of the death event.  That is, survivors of suicide loss can’t stop thinking about the death scene (even when they are dreaming), and disturbing images may flash before the mind’s eye when they least expect it. The horror can be overwhelming and the natural impulse is to stay away from anything that reminds them of the trauma.  Sometimes survivors develop post-traumatic stress disorder (PTSD) in the aftermath of a violent or unexpected death. 
When I first started reading about trauma as a graduate student in the 1990s, I was moved by Ronnie Janoff-Bulman’s book Shattered Assumptions.[4] Her basic premise is that traumatic events shatter three world views that all people tend to hold:
·         Benevolence of the world – people are generally good
·         Meaningfulness of the world – good things happen to good people
·         Self-worth – I am good and can keep myself and those who love me safe and healthy.

All three of these assumptions are usually deeply challenged, if not shattered, after a suicide death. The traumatic responses of re-experiencing intrusive thoughts through flashbacks and ruminations are the mind’s way of rebuilding new world views about the self and the world. When Randy and I were in Hawaii just months after Carson’s death, we were hiking along the Napali Coast – one of the most beautiful places on Earth – and I could not stop ruminating about the horror of my brother’s suicide. I remember saying to Randy, “In the last hour, I have imagined Carson’s final moments at least 40 times and have only thought of our children once. What is wrong with me?”
On the other hand, the grief experience works in phases as survivors of suicide loss come to accept the reality of the loss, and the tendency is to move toward things that remind them of the deceased. The intense sadness can feel like it will never go away; and I like to reframe this grief reaction as honoring our loved one. Kahlil Gibran once said, “When you are sorrowful look again in your heart, and you shall see that in truth you are weeping for that which has been your delight.” 
The alternating cycle of horror and loving memories, of avoiding and embracing things related to the loved one, makes traumatic grief complicated.  Not everyone is incapacitated, however, and many find unexpected twists in the journey can lead them to “rise above it” and integrate their experience into a deeper understanding of themselves, their purpose, and their world.
For more information on getting support in the aftermath of a suicide death, please visit: http://www.suicidology.org/suicide-survivors/suicide-loss-survivors
About the Author
Sally Spencer-Thomas, Psy.D., is CEO and co-founder of the Carson J Spencer Foundation, a Colorado-based nonprofit established after the suicide of her brother. The foundation is known for “sustaining a passion for life” by developing innovative and effective approaches to suicide prevention among working aged people, coaching youth social entrepreneurs to be the next generation of suicide prevention advocates, and supporting people bereaved by suicide. www.CarsonJSpencer.org




[1] Stroebe, Margaret & Schut, Henk (1999). The dual process model of coping with bereavement: Rationale and description. Death Studies, 23(3), 197-224.
[2] Baker, Jennifer, Kelly, Caroline, Calhoun, Lawrence, Cann, Arnie & Tedeschi, Richard (2008). An examination of posttraumatic growth and posttraumatic depreciation: Two exploratory studies. Journal of Loss and Trauma, 13, 450-465.
[3] Ambrose, J. T (n.d.) Traumatic grief: What we need to know as trauma responders. Retrieved October 30, 2005 from http://wwwctsn-rcst.ca/Traumaticgrief.html

[4] Jannoff-Bulman, R. (1992). Shattered Assumptions: Towards a New Psychology of Trauma. New York: Free Press.